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What is The Organization Rare Voices Australia (RVA) About ?

October 2, 2012

       A new organization, Rare Voices Australia (RVA), is created  with the main objective “to unite & represent the interests of all Australians living with a rare disease or disorder, and their families, as 1 voice, with the immediate aim of increasing both public & political awareness of the burden of rare disease ……”.

        Rare Voices Australia is making use of social media tools :

1)  Twitter

2)  Facebook.     

       Orphan drug regulations in Australia are discussed in the Orphan Druganaut September 27, 2012 Blog Post.       

Copyright © 2012-2013, Ann-Teresa Cusenza and Orphan Druganaut Blog.  All rights reserved.

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From → Australia

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