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Patient Families, Advocacy Groups, And Celebrities Campaigning To Bring Kalydeco To The UK

October 3, 2012

       There has been a surge in the use of social media tools by patients & their families, advocacy groups, and celebrities campaigning to bring Kalydeco to the UK :

1)  BBC News October 2, 2012 Article titled,”Cystic Fibrosis drug Kalydeco: Mother urges immediate treatment for patients” :

–    A mother of a child with CF starts an e-petition campaign (has > 11,000 signatures)

–    Kalydeco is approved by the NHS, but the cost is yet to be determined.

2) Video titled,”Dominic Purcell – Cystic Fibrosis Quest For Kalydeco” :

–    Dominic Purcell, well-known actor from the series Prison Break, asks for support in supporting the “Quest for Kalydeco” campaign to bring Kalydeco to the UK & Ireland.

3)  CF Trust UK campaign : “Come join us by liking Quest For Kalydeco on FaceBook” 

Copyright © 2012-2013, Ann-Teresa Cusenza and Orphan Druganaut Blog.  All rights reserved.

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