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What Is It Like To Live With A Rare Disease ?

October 5, 2012

       A September 2012 Psychology Today article titled,”The Loneliest Fight” discusses what it is like for a person living with a rare illness. 

       The first sentence of this article is haunting, ”A person with a rare disease is doubly isolated :  He or she lives with serious illness as well as uncertainty about treatment options. There is no choice for a patient but to become an expert and advocate extraordinaire”.  Four people’s journeys living with a rare disease are presented.

Copyright © 2012-2013, Ann-Teresa Cusenza and Orphan Druganaut Blog.  All rights reserved.

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