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Orphan Drugs And Rare Disease Patient Registries: A Gaucher Disease Registry (#6)

October 10, 2012

       Interesting article on a Gaucher Disease Registry in France that identifies clinical characteristics, complications, and treatment of 562 patients. 

       The Open Access article “The French Gaucher’s Disease Registry: clinical characteristics, complications, & treatment of 562 patients”, is published in October 2012 in Orphanet Journal of Rare Diseases.  

References

Orphan Druganaut September 17, 2012 Blog Post titled,”Orphan Drugs And Patient Registries: China’s 1st Rare Disease Registry (#5)”

Orphan Druganaut September 14, 2012 Blog Post titled, “Orphan Drugs And Patient Registries: EURODIS Policy Fact Sheet (#4)

Orphan Druganaut September 4, 2012 Blog Post titled, “Orphan Drugs And Patient Registries: A User’s Guide to Patient Registries (#3)

Orphan Druganaut September 3, 2012 Blog Post titled, “Orphan Drugs And Patient Registries: A List of Disease Registries in Europe (#2)

Orphan Druganaut August 28, 2012 Blog Post titled, “Orphan Drugs And Patient Registries: A Perspective (#1)

Copyright © 2012-2013, Ann-Teresa Cusenza and Orphan Druganaut Blog.  All rights reserved.

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