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What Is The CFUnite Virtual Conference On Orphan Drug Kalydeco (Ivacaftor) ?

January 7, 2013

       CFUnite (Cystic Fibrosis Unite), an organization that enables “discussion between people with Cystic Fibrosis (CF), parents of children with CF, clinicians and CF researchers”, schedules a live virtual online event on Kalydeco (Ivacaftor) and the Cystic Fibrosis Transmembrane Regulator (CFTR) protein, for January 12, 2013, 13:00 – 14:30 GMT. One can access this event :

uni-of-nottingham.adobeconnect.com/cfunite/
– Get the App for iPhones and iPads
– Get the App for Android devices.

Topics to be discussed live :

– CFTR defect in CF & Kalydeco

– Phase III clinical trial for CF patients with G511D mutation

– Phase II  clinical trial for CF patients with delta-F508 mutation

– The CF Patient

– Discussion & Feedback.

One can access CFUnite at their website, can follow on social media via Twitter at @CFUnite and Facebook/CFUnite.

Copyright © 2012-2013, Orphan Druganaut Blog. All rights reserved.

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