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New Cystic Fibrosis Organization Launches Website And Online Event For Orphan Drug Kalydeco (Ivacaftor)

January 10, 2013

        A new organization, Cystic Fibrosis (CF) Unite, whose purpose is “to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition”, launches its website.

CFUnite has scheduled a live virtual online event on Kalydeco (Ivacaftor) and the Cystic Fibrosis Transmembrane Regulator (CFTR) protein, for January 12, 2013, 13:00 – 14:30 GMT. One can access this event :

University of Nottingham Connect
– Get the App for iPhones and iPads
– Get the App for Android devices.

Topics to be discussed live :

– CFTR defect in CF & Kalydeco

– Phase III clinical trial for CF patients with G511D mutation

– Phase II clinical trial for CF patients with delta-F508 mutation

– The CF Patient

– Discussion & Feedback.

One can follow CF Unite on social media via Twitter at @CFUnite and at Facebook at Facebook/CFUnite.

References

CF Trust UK

Cystic Fibrosis Foundation

Copyright © 2012-2013, Orphan Druganaut Blog. All rights reserved.

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