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CFUnite’s Virtual Presentation On UK Cystic Fibrosis Clinical Trials

February 16, 2013

A new organization, Cystic Fibrosis (CF) Unite, recently launches with the objective “to bridge the gap between people with CF and the researchers investigating CF and how best to treat those with the condition”.

CFUnite has the 1st UK CF Clinical Trials virtual meeting on February 15, 2013, to review and discuss vital aspects of doing clinical trials in CF. There are 9 videos available on the organizations’s website for those who weren’t able to participate in the event. The videos are on the following topics :

Video #1 – Introduction to the event

Video #2 – Professor Alan Smyth, Professor of Child Health at the University of Nottingham, presents on the topic of increasing access for patients to participate in CF clinical trials

Video #3 – Dr. Janet Allen, Director of research at CF Trust UK, discusses the role of clinical trials & the CF Trust’s new research strategy

Video #4 – Dr. Diana Bilton, from the Royal Brompton Hospital and Imperial College London, discusses the need for CF specialists to work with industry

Video #5 – Q&A Session from online audience

Video #6 – Dr. Colin Powell presents lessons from the MAGNETIC study & the challenges of running clinical trials

Video #7 – Dr. Simon Langton-Hewer provides updates to the TORPEDO study

Video #8 – Professor Rosalind Smyth presents the issues with recruiting patients for clinical trials

Video #9 – Afternoon Q&A session.

Recent CF Developments

 Bronchitol (Mannitol) not recommended by the Scottish Medicines Consortium (SMC) for CF

Newcastle Herald article titled, “New drug helps Pharmaxis cut losses”

Copyright © 2012-2013, Orphan Druganaut Blog. All rights reserved.

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