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Rare Diseases: A Call For Abstracts

April 7, 2013

The U.S. Agency for Healthcare Research and Quality (AHRQ) announces that it will sponsor a special journal supplement for the Journal of General Internal Medicine (JGIM), on research methods for evaluating health outcomes in rare diseases. JGIM, the official journal of the Society of General Internal Medicine, promotes improved patient care, research, and education in primary care, general internal medicine, and hospital medicine to an international audience of practicing clinicians and medical researchers. AHRQ, Brigham and Women’s Hospital, and other organizations, such as the National Organization for Rare Disorders (NORD) are supporting this effort.

The announcement invites authors to submit abstracts for manuscripts that describe original research or systematic reviews on methodologies for studying patient-centered health outcomes in rare diseases. The submissions should show how the authors’ approach applies to problems encountered in the design, analysis, or conduct of rare disease research.  

Topics of Interest

Topics of interest include :

• Rare disease patients’ health outcomes in clinical trials
• Emerging data sources for observational research on rare disease patients’ health outcomes
• Novel analytic methods for observational research on rare disease patients’ health outcomes
• Integrating stakeholder involvement in assessing rare disease patient health outcomes
• Economic, regulatory, ethical, legal, and social issues related to the study of rare disease health outcomes.

Key Dates

• 05/31/13:  Abstract submission forms are due
• 06/26/13:  Abstract authors who are selected to write a full manuscript are notified
• 11/22/13:  Complete manuscripts are due
•        2014:  Publication of the supplement to the Journal of General Internal Medicine.

Reference

AHRQ announcement and Abstract information.

Please Note: “Icon Announcer” by Orion 8 [Public domain] | Wikimedia Commons.

Copyright © 2012-2013, Orphan Druganaut Blog. All rights reserved.

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