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Pediatric Diseases: Gabriella Miller Kids First Research Act

April 7, 2014

The Gabriella Miller Kids First Research Act (H.R. 2019) prioritizes US taxpayer funding for scientific research of pediatric diseases and disorders such as cancer and autism. The Act is named after Gabriella Miller, a 10-year old pediatric cancer awareness advocate, who passed away in October 2013 of an inoperable brain tumor. While fighting cancer, Gabriella Miller raised awareness and campaigned to help other children with her dream that one day childhood cancer would be eliminated. Gabriella and her family founded the nonprofit organization, Smashing Walnuts Foundation, which is dedicated to finding a cure for childhood brain cancer. The Miller Family are present on April 3rd, when President Obama signed the Act into law.

Gabriella Miller Kids First Research Act

•   Amends Internal Revenue Code to end the entitlement of any political party to a payment from the Presidential Election Campaign Fund for a presidential nominating convention

•   Transfers money amounts in each account maintained for such purpose for the national committee of a party, to a 10-Year Pediatric Research Initiative Fund

•   The money amounts are available only for allocation to national research institutes and national centers through the National Institutes of Health’s (NIH) Common Fund, for making grants for pediatric research under the new Act

•   Requires the Director of NIH to allocate these funds appropriated under this Act for making grants for pediatric research:

1.   Representing important areas of emerging scientific opportunities

2.   Rising public health challenges

3.   Knowledge gaps that require special emphasis and would benefit from additional research

•   Authorizes $12.6 million (total of $126 million for 10 years) out of the 10-Year Pediatric Research Initiative Fund for each of the FY2014 – FY2023 for pediatric research through NIH’s Common Fund.

Chronological Steps For Passing of Act

•   In December 2013, passes the House of Representatives in a 295-103 vote

•   In March 2014, passes the Senate by unanimous consent

•   On April 3, 2014, is signed by President Obama into law.

Please Note:One Step at a Time” by Girlfierce Photography [CC-BY-2.0] | via Wikimedia Commons.

Copyright © 2012-2014, Orphan Druganaut Blog. All rights reserved.

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