Patient Advocacy: Top Grant-Giving Disease Foundations
This is the third Blog Post in a series that examines the influence and power of patient advocacy groups, foundations, and alliances in helping and influencing clinical research and the different stages of drug development in the rare disease and orphan drug space.
Last week, GEN (Genetic Engineering & Biotechnology News), publishes an online list of the top 30 Nonprofit Disease Foundations (2014 Edition) that give grants and awards for research. The Nonprofit Disease Foundations are ranked by the percentage of total revenues spent on grants/awards, based on “audited consolidated financial statements.”
The chart below identifies the top 10 Nonprofit Disease Foundations plus the rare disease foundations ranked among the 11-30. The data in the chart below is from the online article published in GEN (Genetic Engineering & Biotechnology News).
Top Nonprofit Disease Foundations
|GEN Rank #||Disease Foundation Name||% of Revenues Awarded||Amount of Research Grants/Awards(Approx in Millions)|
|1||Melanoma Research Alliance Foundation||85.5%||$7.431|
|2||Cancer Research Fund of the Damon Runyon-Walter Winchell Foundation||73.6%||$12.346|
|3||Rheumatology Research Foundation||65.9%||$11.006|
|4||The Michael J. Fox Foundation for Parkinson’s Research||63.0%||$55.356|
|5||Alzheimer’s Drug Discovery Foundation||60.2%||$7.462|
|6||Juvenile Diabetes Research Foundation||51.5%||$106.005|
|7||Parkinson’s Disease Foundation||49.1%||$4.955|
|8||Myelin Repair Foundation||37.9%||$1.749|
|9||Brain Research Foundation||35.8%||$0.992|
|10||Foundation Fighting Blindness||32.3%||$14.408|
|12||Cystic Fibrosis Foundation||24.8%||$73.801|
|14||The ALS Foundation||23.3%||$5.993|
|16||Muscular Dystrophy Association||21.8%||$34.624|
The article concludes that :
“ … the foundations offer valuable help to researchers—not just a shower of cash, but targeted funding programs and perhaps most important, communities with which to share knowledge and collaborate on future studies. Their role in funding research can be expected to grow in coming years.”
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