World Hemophilia Day 2015: April 17
The World Federation of Hemophilia (WFH), an international not-for-profit organization established in 1963, provides global leadership to improve and support care for people with inherited bleeding disorders, including Hemophilia, von Willebrand Disease, rare clotting factor deficiencies, and inherited platelet disorders. World Hemophilia Day (WHD) is started in 1989 by WFH in honor of WHF founder Frank Schnabel’s birthday.
Hemophilia is quite rare – about 1 in 10,000 people are born with it. Hemophilia A is the most common type of Hemophilia. A person who has Hemophilia A doesn’t have enough clotting Factor VIII. Hemophilia B is less common and people with Hemophilia B do not have enough Factor IX. Hemophilia is usually inherited, but about 30% of people with Hemophilia do not inherit it – it is caused by a change in the person’s own genes.
On April 17th, hemophilia communities worldwide will mark WHD, to help raise awareness and understanding of Hemophilia and other bleeding disorders. For 2015, WHD will focus on the importance of Building a Family of Support:
“Families come in many forms but they all share the ability to support and advocate. World Hemophilia Day provides an opportunity to talk to your extended family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding disorder.”
WFH provides educational and promotional materials to help with WHD activities:
• WHD logo
Please Note: “World Hemophilia Day – April 17” Logo courtesy of World Federation of Hemophilia (WFH).
Copyright © 2012-2015, Orphan Druganaut Blog. All rights reserved.