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Patient Advocacy: Top Grant-Giving Disease Foundations

June 5, 2015



This week, GEN (Genetic Engineering & Biotechnology News), publishes an online list of the top 35 Nonprofit Disease Foundations (2015 Edition) that give grants and awards for research. The Nonprofit Disease Foundations are ranked by the “percentage of total expenses spent on these grants and awards.”

Per the article:

“The list does not constitute a complete listing of all disease foundations. Also, the list does not include Section 501(c)(3) exempt private foundations (Bill & Melinda Gates, Clinton) or institutions that care for patients as well as carry out research (Dana-Farber, Mayo Clinic) or research institutes.”

The chart below identifies the top 10 Nonprofit Disease Foundations plus the rare disease foundations ranked among the 11-35. The data in the chart below is from the online article published in GEN.

Top Nonprofit Grant-Giving Disease Foundations

GEN Rank # Disease Foundation Name % of Total Expenses Awarded As  Grants Total Scientific Awards (Approx in Millions)
1 Cancer Research Fund of the Damon Runyon-Walter Winchell Foundation 80.2% $16.881
2 The Michael J. Fox Foundation for Parkinson’s Research 79.4% $67.429
3 Brain And Behavior Research Foundation 79.1% $22.682
4 Melanoma Research Alliance Foundation 78.7% $8.485
5 Rheumatology Research Foundation 76.7% $10.983
6 Alzheimer’s Drug Discovery Foundation 60.2% $7.137
7 Brain Research Foundation 53.4% $1.254
8 Parkinson’s Disease Foundation 49.6% $4.956
9 Cystic Fibrosis Foundation 46.4% $88.286
10 JDRF (Juvenile Diabetes Research Foundation) 45.8% $98.317
11 Foundation Fighting Blindness 42.2% $12.721
13 Hereditary Disease Foundation 32.1% $0.709
15 PKD Foundation 26.0% $1.894
16 Myelin Repair Foundation 25.6% $1.649
17 The ALS Foundation 25.4% $6.652
19 Chordoma Foundation 21.67% $0.250
22 Muscular Dystrophy Association 17.42% $25.783
29 March of Dimes Foundation 10.36% $22.392
34 National Hemophilia Foundation 3.7% $0.516


Please Note: “Kid Hugging a Rainbow” by Marendo Müller, artwork (Own work) [Public domain] | Wikimedia Commons.

Copyright © 2012-2015, Orphan Druganaut Blog. All rights reserved.


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